James' Journey Beach Volleyball Fundraiser 2012
SOME WORDS FROM THE DIRECTOR ABOUT JAMES' JOURNEY:
It was at our last volleyball game in April 2012 when one of our volleyball members, Rachel Martin, mentioned to a group of
us waiting to start our games, that her son, James, was recently diagnosed with a rare form of Muscular Dystrophy called
Duchenne. Rachel mentioned that for the longest time she knew her son did not run like the other boys in his class. She
noticed this especially in kindergarten and first grade. Everyone (including James' doctor) told her things were fine and every
child develops differently, but being his mom, Rachel knew something was wrong. Finally Rachel pushed to see a specialist
where it was in February 2012 she was given the diagnosis.
Since that night, I have discovered that James has been fitted for leg braces and just this week (July 23rd) he had already
lost an additional 5% of muscle mass in his legs. His medicine had to be increased. A wheelchair is in the near future. Rachel
has already moved to a main level apartment which will be more wheelchair friendly. I discovered Rachel is a single parent,
and while James has some medical coverage, Rachel is responsible for a percent of additional costs, including the
cost of leg braces, a wheel chair, home modifications and prescriptions.
I can only imagine how difficult it is leading your family through a lifestyle change. How difficult it would be as a parent to comprehend the idea that statistics predict you will lose your child at a young age. I cannot imagine, though, going through all of this, wanting to give your children the best of everything, but in the back of your minding thinking "how am I ever going to afford it?"
100% of the proceeds from this tournament will be presented to the James' Journey Trust Fund. While I know this will most likely only cover a small portion of the bills for James, I'm hoping whatever we can raise, will make the journey a little more enjoyable and raise awareness of the hopes for a cure.
- Jill Nothstein, Director, Cambridge Adult Team Sports
It was at our last volleyball game in April 2012 when one of our volleyball members, Rachel Martin, mentioned to a group of
us waiting to start our games, that her son, James, was recently diagnosed with a rare form of Muscular Dystrophy called
Duchenne. Rachel mentioned that for the longest time she knew her son did not run like the other boys in his class. She
noticed this especially in kindergarten and first grade. Everyone (including James' doctor) told her things were fine and every
child develops differently, but being his mom, Rachel knew something was wrong. Finally Rachel pushed to see a specialist
where it was in February 2012 she was given the diagnosis.
Since that night, I have discovered that James has been fitted for leg braces and just this week (July 23rd) he had already
lost an additional 5% of muscle mass in his legs. His medicine had to be increased. A wheelchair is in the near future. Rachel
has already moved to a main level apartment which will be more wheelchair friendly. I discovered Rachel is a single parent,
and while James has some medical coverage, Rachel is responsible for a percent of additional costs, including the
cost of leg braces, a wheel chair, home modifications and prescriptions.
I can only imagine how difficult it is leading your family through a lifestyle change. How difficult it would be as a parent to comprehend the idea that statistics predict you will lose your child at a young age. I cannot imagine, though, going through all of this, wanting to give your children the best of everything, but in the back of your minding thinking "how am I ever going to afford it?"
100% of the proceeds from this tournament will be presented to the James' Journey Trust Fund. While I know this will most likely only cover a small portion of the bills for James, I'm hoping whatever we can raise, will make the journey a little more enjoyable and raise awareness of the hopes for a cure.
- Jill Nothstein, Director, Cambridge Adult Team Sports
TOURNAMENT DETAILS
Friday Night August 24th
Cambridge Sports Park (formerly Cambridge Ice Park)
Cambridge Sports Park (formerly Cambridge Ice Park)
Date: Friday Night August 24th, 2012
Location: Cambridge Sports Park (Formerly the Cambridge Ice Park), 1001 Franklin Boulevard, Cambridge, ON
Time: 6:30pm - 10:30pm (outdoor under the lights)
Format: 6 on 6 co-ed beach volleyball tournament (2 males / females on the court at all times). Rally point. Teams will be divided into the level indicated on their registration form (beginner, intermediate, advanced).
Cost: $100 per team (all proceeds will go towards James' Journey Trust Fund). Cambridge Adult Team Sports (C.A.T.S) is challenging each team to get 10 additional sponsors. A pledge sheet link has been provided at the top of this page. Tax receipts will be issued to all sponsors who donate $20.00 or more. C.A.T.S. will be sponsoring the rental of the facility for the evening.
Prizes: Prizes will be awarded to the first place team and the team to raise the most money. Each team is also asked to bring one item to be used for draws held throughout the tournament.
Cambridge Sports Park has a licenced facility on-site. Food and drink specials will be offered to tournament participants.
Registration: The deadline to register is Sunday , August 19th. Click on the registration link above to register as a team or group.
Tournament Contact:
Jill Nothstein
League Director
Cambridge Adult Team Sports (C.A.T.S.)
519-222-5206
jill@cambridgesports.org
www.cambridgesports.org
Location: Cambridge Sports Park (Formerly the Cambridge Ice Park), 1001 Franklin Boulevard, Cambridge, ON
Time: 6:30pm - 10:30pm (outdoor under the lights)
Format: 6 on 6 co-ed beach volleyball tournament (2 males / females on the court at all times). Rally point. Teams will be divided into the level indicated on their registration form (beginner, intermediate, advanced).
Cost: $100 per team (all proceeds will go towards James' Journey Trust Fund). Cambridge Adult Team Sports (C.A.T.S) is challenging each team to get 10 additional sponsors. A pledge sheet link has been provided at the top of this page. Tax receipts will be issued to all sponsors who donate $20.00 or more. C.A.T.S. will be sponsoring the rental of the facility for the evening.
Prizes: Prizes will be awarded to the first place team and the team to raise the most money. Each team is also asked to bring one item to be used for draws held throughout the tournament.
Cambridge Sports Park has a licenced facility on-site. Food and drink specials will be offered to tournament participants.
Registration: The deadline to register is Sunday , August 19th. Click on the registration link above to register as a team or group.
Tournament Contact:
Jill Nothstein
League Director
Cambridge Adult Team Sports (C.A.T.S.)
519-222-5206
jill@cambridgesports.org
www.cambridgesports.org
REGISTRATION & payment DEADLINE: SUNDAY , AUGUST 19TH
STEP 1:
STEP 2:
or mail a cheque to (please make cheques payable to James' Journey):
Cambridge Adult Team Sports
618 Trico Drive
Cambridge, ON N3H 5P2
Payment is due by Sunday, August 19th
Cambridge Adult Team Sports
618 Trico Drive
Cambridge, ON N3H 5P2
Payment is due by Sunday, August 19th
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